Memories of Jason Freiboth: Update from Julie

Friday, December 3, 2010

Update from Julie

Hello - Thought I would send out another update, although I don't have many details - medically. While the family was in San Diego for the Thanksgiving holiday, Jason lost use of his legs, and has no feeling below his waist. He has been in a wheelchair since before Thanksgiving. At this time Candy has stopped working and is taking care of Jason full-time. She does have assistance from Hospice and has engaged a home health agency to come in a few times a day and help her move Jason from bed to chair, etc. (they also help with house cleaning, meal prep., companionship...pretty much whatever Candy/Jason ask for). This has been great. They are still working out a schedule as to how much help they need, when they need it, etc., and getting used to having someone in the house is going to take some time. Jason's spirits are (seem) good. He is the same old guy that we all know and love. Candy is hanging in there. She is one tough cookie and is taking great care of her entire family. Candy's mom arrived yesterday and will be staying for.....as she puts it, "the winter". :) She will be a big help with the kids and support of Candy/Jason.

I expressed to Candy that many people would like to visit them. She said, "Yes, please." The best way to do that is to schedule through Candy. Texting is your best bet. 541-390-9811. Be patient. Some days are easier than others, but they want folks to visit. Don't be afraid that you are bugging them - you are supposed to bug them - they are your friends :)

One area that we can all help with starting now, would be providing dinners. I will keep a calendar of names/dates. Just send me a few dates you are interested in, and I will sign you up for one or a few, and get back to you. In order to keep their evening dedicated to family, you can either have me pick up the meal or bring it to my house. I will take dinners over. They just don't want to have to have social hour every evening when someone delivers a meal. This will make Candy's evenings MUCH less stressful, and she can focus on her family. So get your apron on and start cooking. Doesn't have to be fancy. Doesn't even have to be good........well, kinda good.

Of course they are overwhelmed by the love and support from you all. It seems every day, they are told of someone wanting to do something for them, or just doing something out of the blue. What great friends you all are!

Get out your calendar and send me the dates. Thanks again!!

Love,Julie Cavanaugh

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Background on Jason's Battle with Cancer

Skin cancer has taken a toll on longtime Bend park district sports program do-it-all Jason Freiboth, but with support from myriad sources he hopes to beat the potentially deadly disease. If you or your children have played organized recreational sports in these parts over the past dozen years, there’s a good chance you’ve come across Jason Freiboth (it's pronounced FRY-both). An employee of the Bend Metro Park and Recreation District since 1996, Freiboth (now 37) has had a hand in just about every sports program the district offers.

It began in early 2002 as a tiny white spot on his lower lip. “Like a flake of dry, chapped skin,” Freiboth describes it. “It would come and go, but it wouldn’t go away.” So he had it checked, and the result was not good: He tested positive for skin cancer — specifically, squamous cell carcinoma, or SCC. A procedure to remove the cancerous tissue was successful, and Freiboth counted his blessings and went on with his life. “They (doctors) told me it looked like they got everything and that the margins were clear (no sign that the cancer had spread),” he says. “I was good to go.”

That he was … for the next five years. Cancer is random. It is as unpredictable as it is indiscriminate. And while anyone who has developed skin cancer is at increased risk of encountering the disease again, Freiboth did not suspect cancer when, in spring 2006, he noticed swelling on the right side of his neck. It turned out to be cancer — the SCC was manifest in Freiboth’s lymphatic system. The unwelcome development meant another round of surgery, this time to remove the cancerous lymph node and a number of the surrounding nodes. That operation, too, was declared a success. After Freiboth made a quick and encouraging recovery from the neck operation. “It looked like I was cancer-free,” he recalls, “and in the clear.”

He had heard that before, of course, only to be disappointed. But that made him no better prepared when a checkup last fall revealed another little spot on his lip. Or when another biopsy determined that the “spot” represented a different form of skin cancer: melanoma. While not as common as squamous cell carcinoma, melanoma is even more dangerous, causing more deaths (an estimated 8,000 in the U.S. in 2007) than any other type of skin cancer. Like SCC, melanoma can spread to other parts of the body if not treated early, so Freiboth went back under the surgeon’s knife. First, he underwent a “lip shave.” “They peeled all the skin off my bottom lip and pulled the skin from the inside of my mouth to make a new lip,” Freiboth explains. A few weeks later, after it was discovered that the lip shave had not removed all of the cancer, Freiboth underwent another procedure, during which a half-inch wedge of his lip was removed to assure that the diseased tissue was gone. And, he says, it appeared once again that he was good to go.

But as a precaution, his doctor wanted to set him up for radiation treatment. Freiboth was also prescribed a positron emission tomography exam, or PET scan, which allowed his radiation oncologist to perform a full-body examination for cancer. The scan was performed in early March — and Freiboth’s oncologist got back to him with some troubling news. “She said, ‘We found a suspicious spot we need to look at,’” he recounts. “I asked her where. And she said, ‘On your brain.’ Further testing determined that the spot the oncologist had detected was a tumor. “About the size of a walnut,” says Freiboth, “on the back of my brain.” On March 19, he underwent surgery to remove the tumor — most of it, anyway. And on June 9, he completed a series of hard-hitting, “whole brain” radiation sessions in an attempt to shrink what remained of the tumor. Dr. Linyee Chang, a radiation oncologist with the Cancer Treatment Center at St. Charles Bend, says Freiboth’s prognosis depends on how he responds to treatment. “His youth and his excellent health status are in his favor,” she observes. “He can tolerate aggressive treatment. “And,” Chang says, “he has a very positive attitude, and a strong support system.”

Freiboth is thankful to be reasonably well insured. But insurance doesn’t help with travel expenses, and since his cancer returned in 2006 Freiboth has made numerous trips to Portland to see doctors and specialists. He also worries that his ordeal could result in substantial time away from work and a possible long-term loss of income. On top of that, his is not the family’s only serious health issue: Seven-year-old son Max was born with hemiplegic cerebral palsy, which requires considerable therapy and treatment. That means even more trips to Portland, for visits to a neurologist and, every few months, to the Shriners Hospital for Children. As for the physical toll the cancer is taking, Freiboth has his good days and his bad days. Work serves as a refuge of sorts for Freiboth, allowing him to turn his attention away from his frustrating and frightening fight against a dreaded, life-threatening disease.

The latest radiation sessions have provided hope. And he remains hopeful as he braces for upcoming stereotactic radiation, which he describes as “a one-shot treatment” to attack whatever remains of his tumor. But he has been let down often enough to be guarded with his optimism. Same for his wife. “I’ll believe it (the cancer) is gone,” says Candy Freiboth, “when I see the MRI (magnetic resonance imaging) that says it’s clear.” Jason has “metastatic” melanoma, which means the disease has entered his bloodstream. That, Dr. Chang explains, is how the melanoma spread to Freiboth’s brain. Only time will tell if the radiation treatment will stem the spread. “Melanoma’s a strange thing,” Freiboth says. He knows that if it continues to advance, his outlook is grim. “I could have six months to live,” he says matter-of-factly. “I don’t think they really know.” Since he was first diagnosed with skin cancer, Freiboth has experienced a range of emotions: anger, sadness, fear. And, of course, he wondered, “Why me?” Through it all, though, he has been buoyed not only by his family but by an extended family of co-workers and friends. “We’re hoping that it’s a short-term deal for Jason and that he can fight through this,” says Eric Carmichael, one of the basketball players at the Athletic Club of Bend, where Jason has ref'd for years. “We’re in his corner … we’re praying for him. “The world’s a better place with guys like him in it.”

Memories of Jason Freiboth

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Friday, December 3, 2010

Update from Julie

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Slideshow of Jason & Family

Slideshow of Pasta Feed

Background on Jason's Battle with Cancer